My love post angiogram 12/18/12
Robin Goldman and I got some discouraging news yesterday with his angiogram and I decided to post a question on the AVM Survivor's Network to tap in to their collective courage and wisdom. The wise response back from "Ron" are words that can benefit all of us..... As Robin and I continue to travel this road, we are so very thankful for the angels that appear in our midst... like my friend, Evelyn who came down to the waiting room yesterday and cried with me as we heard news; or the person I've never met who came over to me and handed me rosary beads..... and my friend Susan M. Hahn who was there with us and will be there on Monday to meet with the doctor.... there are blessings amidst the pain, if we choose to look for them.... And, for Robin and I, as they say..... "it's not over 'til it's over!"
Thanks, Ron!.........
"Sorry no experience in cortical venous drainage.
As far as encouraging words, I've watched my wife go into brain surgery about 10 times (counting embolizations) and my son twice to stop seizures. It is not a fun journey, but for us, everything came out well. I wish the same for you!
I would encourage you to cherish every hour of every day. Forget about cleaning the house or doing laundry (hire someone if you can, or just ignore it). As much as you can, go and do things that are fun. If you enjoy reading, read all the encouraging books you can find. Be a joy to those around you, in any way that you can.
Give your friends and family that want to help you specific things they can do. They are hurting too, and any tasks they can lift from you helps YOU and THEM as well.
Give yourself permission not to hang around negative people (even if they are family). Turn off the news. We joke with our kids that we bought a new tv to watch Gun Smoke in hi def!
Laugh everyday, or every hour.
I am reminded of a saying I read in one of the Chicken Soup of the Soul books: "If you found out you only had an hour to live, who would you call, what would you say, ............ and what are you waiting for???????????????" Not meaning this as a downer thought, just a call to action.
Make a bucket list and start. Not suggesting round the world trips. Heck it might be 'go to dinner and a movie'.
I hope this helps and I wish you the best,
Ron, KS"
Thanks, Ron!.........
"Sorry no experience in cortical venous drainage.
As far as encouraging words, I've watched my wife go into brain surgery about 10 times (counting embolizations) and my son twice to stop seizures. It is not a fun journey, but for us, everything came out well. I wish the same for you!
I would encourage you to cherish every hour of every day. Forget about cleaning the house or doing laundry (hire someone if you can, or just ignore it). As much as you can, go and do things that are fun. If you enjoy reading, read all the encouraging books you can find. Be a joy to those around you, in any way that you can.
Give your friends and family that want to help you specific things they can do. They are hurting too, and any tasks they can lift from you helps YOU and THEM as well.
Give yourself permission not to hang around negative people (even if they are family). Turn off the news. We joke with our kids that we bought a new tv to watch Gun Smoke in hi def!
Laugh everyday, or every hour.
I am reminded of a saying I read in one of the Chicken Soup of the Soul books: "If you found out you only had an hour to live, who would you call, what would you say, ............ and what are you waiting for???????????????" Not meaning this as a downer thought, just a call to action.
Make a bucket list and start. Not suggesting round the world trips. Heck it might be 'go to dinner and a movie'.
I hope this helps and I wish you the best,
Ron, KS"
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